Sandy

‘Isn’t she beautiful!’ People would exclaim, ‘She looks just like Lassie!’ to which I’d laugh and say ‘yes, he does a bit doesn’t he?’

I named my boy dog, Sandy, as a simple-minded 7 year old, thanks to the musical Annie which I had watched the day before we brought him home. Annie’s dumb dog who followed her home was called Sandy, so of course, became the name of the greatest friend I ever had.

I grew up with a dog who was bright, intelligent, incredibly hairy, gentle but with an independent spirit. In some ways he could be more cat-like, he could be loving and playful one moment, the next he’d either nip or stalk off in a huff for no apparent reason. He loved to be taught tricks, and I took that up as a very important job. I taught him the standards, sit, down, stand, shake paws. I got inspired by the dancing border collies on Crufts, and taught him roll-over, play dead, weave between my legs, jump over legs or through hoops, and twirl. He was a good student, and learnt them fast, and was always willing to participate in showing off to friends and family. The only thing he was rubbish at doing was staying on command. He didn’t see the point of that one. He’d sit for a few seconds watching you abandon him, then follow you. It either drove me mad, or made me laugh. I gave up on that one in the end.

Sandy had the most glorious fur coat. It was a deep ginger colour, with some softer biscuit beneath, a huge white mane that Gandalf would have been jealous off, dainty white feet and a black spot on his tail. His coat had this lovely, warm, musky doggy smell, which provided great comfort when sobbing into his fur. His feet had the best smell of all, I could sniff them all day if he’d let me. He had soft, oval shaped brown eyes, which had the look that he could understand everything you were saying to him. His ears were a little lopsided, one flopped downwards while the other stuck upwards. His muzzle was far too long, he was constantly banging it on lamp posts, chair and table legs, the floor when he sneezed and human legs, and when you threw toys at him, they usually bounced off his nose and bonked him on the head instead. He really was useless at catch.

He was a smart little fella, and taught himself the Happy Birthday song. We always used to ring up some family members on their birthdays to sing to them down the phone. One day, apparently, Sandy decided he was going to join in, and barked along in time to our singing. After that, it became a tradition to always have him there to sing along, whether it was in person at a party or down the phone. If it was us getting sang to down the phone, dad put it on speaker phone just so Sandy would join in. It was a cracker and our family loved him for it.

He loved to go for long walks, but was not fond of other dogs, or in some cases, a little too fond of them. He either blanked them completely or stalked them until he was able to hump them, quite often getting lost in the process! We could spend hours searching the park for him, only to get home and discover him on the doorstep already with an expression of ‘I’m sorry, I got carried away, please love me!’ It was hard to stay cross at his face.

As I grew up, my relationship with Sandy grew stronger. He was there for me when I was being bullied, and he stood there and barked at the girls who were picking on me, not friendly at all. They poured juice all over him once, and he ignored it. I had to wash him when I came home, I couldn’t believe they’d do that to him. He was stoic and strong, and he taught me to be the same. But with people he knew I loved, he was friendly and playful. When I first met my partner, Sandy charged up to him, bushy tail over his back, and with a joyful bark, he thrust his head into poor Chris’s crotch, causing him to double over and put his arms round Sandy’s waist in a hug to save himself. After that, Sandy always greeted Chris in the same way. It sure made me smile.

At Christmas, he was just as excited as the rest of us. He had his very own stocking, which we stuffed with presents. He was very careful with unwrapping so as not to damage his new things, pulling the paper off gently until he got to the present. One year we had some people round on Christmas Eve, and wondered where the dog was as  he was rather quiet. We went into the back room and found he had helped himself to one of his presents which we’d left under the tree as it was too big for the stocking! This amazed us because he always had such restraint and never made attempts to steal food even if it was right under his nose. We let him off for the present, after all, it was his, and it was Christmas! You certainly couldn’t fault his sense of smell…

He really was a great dog, full of affection. He’d nudge your arm if he wanted a fuss, especially off my father, and sometimes he’d climb on to your knee but kept his back legs on the floor because he knew he wasn’t technically allowed on the furniture. I could lie on the floor and pat it, he’d flop down beside me and curl up there, gnawing my fingers gently and making funny grunting noises. If he felt you weren’t giving him enough attention, he’d give sharp, quick barks. His tail would swish from side to side furiously if you’d been gone for a while. When he got old, he never noticed if you left the house as he was always in bed asleep, and we’d come home to find him in exactly the same position, with his biscuits under his nose where we’d left them!

I couldn’t have asked for a better childhood best friend, and I was incredibly heartbroken when one morning we got up to find he couldn’t rouse himself from his bed. He’d wet himself too, which was rare for him, and was staring blankly into the distance  as though he wasn’t there. We took him to the vets who said that he was weak and tired, and there was nothing more he could do for him. Sandy sat up then, looked at us straight in the eyes, making our hearts skip, but then slid back down, back into his stupor. We made the tearful decision to let one of the biggest members of our family go. He’d clearly looked at us to say ‘I’m done, now, guys, I want to go.’ I’ve never felt grief like it, the tears that spilled when his last breath escaped. We took one last whiff of his beautiful fur, held his sweet paws, kissed his muzzle, and left. Leaving him was the hardest thing we ever did.

His ashes are buried in our garden now, by the kitchen window, with a plaque my dad made with ‘Sandy’ carved into it. Gone, but never forgotten.

My Hearing Loss

For a long time, I’ve struggled to come to terms with my hearing impairment. I don’t have any desire to be different to the hearing world, yet I am. Every day I face some kind of struggle, whether it’s a stranger in the street asking for directions, a trip to the Jobcentre where I know they are going to forget I can’t hear them shouting me across the room, ordering food at a cafe, sitting with a large group of people and not being able to keep up with their conversations – all of this and more are things I go through every day.

I always say to myself that my hearing doesn’t define me, but sometimes it’s hard to listen to my own advice. Looking for jobs is something I find extremely difficult because of things like ‘needs good telephone manner’, ‘good oral communication skills’ ‘customer service’ makes me feel uncomfortable inside. I know I’m smart, and I know I can do a lot of things, but I lack the confidence. And the ears.

I don’t use sign language, and I think that is something that surprises people. The only thing I really know in BSL is the alphabet and how to say ‘My name is Nicola’. I’ve always been able to hear my own voice, so I’ve never needed sign language. I can talk very well, a lot of people say to me ‘you wouldn’t know you were deaf because you talk so well!’ It’s not because I can’t hear things, it’s because voices don’t sound so finely tuned as they should do.

I have a disorder that I share with my mum and brother called CAPOS Syndrome. It is very rare, in fact we seem to be the only people who have it. You’ll probably want to know what CAPOS stands for, so here goes…

Cerebellar Ataxia

Areflexia

Pes Cavus

Optic Atrophy

Sensorineural deafness

A lot of complicated things, basically. The Ataxia makes our balance quite bad, we all had ‘Ataxia attacks’ when young which started all this off. Areflexia points to the fact that we don’t have any reflexes – for example if you hit our knees we wouldn’t jerk our legs upwards. Pes Cavus means that we have high arches in our feet (or at least my mum and brother do, I seemed to have escaped this one slightly) which is caused again by our balance issues, needing to clench our feet in order to stop falling over so much. Optic Atrophy highlights the damage done to the nerves in the back of our eyes, meaning we have poor eyesight, but again I’ve largely escaped this one, only suffering from distance issues and a squint, whereas my brother needs a guide dog. Both my mum and brother have got ‘wobbly eyes’, in the sense that their eyes seem to be wobbling around like jelly constantly. Mine don’t do this unless I’m really concentrating on something far away.

Then the biggie: Sensorineural deafness, the one I really struggle with the most. I find it unbelievably frustrating to not be able to follow conversations, even with hearing aids in. My mum and brother are again, worse than me with this one. This kind of deafness is to do with the middle ear, and the damage caused to the nerves.  It reduces our ability to hear faint sounds, and so even when talking at a normal level voices may still sound muffled or unclear. Think of an out of tune radio – that’s the kind of noise we hear.

Throughout school I was bullied for my hearing problem, which I didn’t help with because I was too shy and quiet to say anything to shut them up. I’d have people mouthing ‘can you hear me?’ at me, get told I ‘wasn’t really deaf, just pretending to be to get attention’. It hurt and it really didn’t help my confidence. I didn’t do as well in school as I could have, skiving off frequently, getting into trouble with teachers and school nurses, falling out with friends. I definitely had problems with concentration fatigue, zoning out in lessons when the teacher was talking because I couldn’t keep up with them. But I genuinely tried hard in the lessons I enjoyed, such as English. I came out of school with an A in my GCSE English, which proved I was capable. I just would’ve been better as a student on her own or with a couple of students, rather than a whole school.

What I would love is to be able to communicate and hear well, but that’s never going to happen. I know i can work as I’ve done lots of volunteering, I’ve worked in a nursing home as a cleaner, I’ve done an internship in Reading Resources. I even went to university to study English, which amazingly I came out with a 2.1 degree in. It’s just about finding my feet really, finding the courage to get myself out there, and working out exactly what I want to do. I know I’d like to try to get somewhere with writing, but I have no idea where to start.

I do love my life as it is currently, I’ve got my own flat, a lovely partner, a great family and some sweet friends. The only things I’m lacking in are pets (no pets allowed in my flat), enough money to save for a mortgage and a nice job that I enjoy. I hope something will come along and I’ll have the whole lot, maybe I’ll get married and have children. I’d love to get married. I think it would be lovely. I’ve had my partner for 8 and a half years now. He’s so kind and understanding. I don’t honestly know where I’d be without him now.

What I’m trying to say with this article, I suppose, is that deafness is a barrier to a lot of things but at the same time it makes me who I am. I might have been a totally different person if I wasn’t deaf. I like who I am now, even though I never used to. It’d be great to hear of any other people with Sensorinueral deafness and what they do, do you work, how did you get there? I’d really love to know. Inspire me, please, sometimes I feel so down.

Rescue Centre Cats

Cats – you either love them or you hate them, a bit like marmite. Some of them are sweet-natured gentle souls who wouldn’t even hurt a fly, and some of them seem to be just plain evil, ready to shred apart anything, human or non-human, that gets too close to their personal space.

I’ve been working in the cattery of a rescue centre for about 18 months, and I’ve certainly experienced every kind of cat. You learn very quickly which cats are safe to touch, which ones have good days and very, very bad days, and which ones that have no desire to learn how to behave suitably at all. Each cat at the rescue, I have found, have their own characters, and I wanted to share with you a few of my favourites, some of which are no longer at the rescue.

When I first started, the first cat I met was an elderly black and white cat with the most marvellous moustache. He wasn’t in the slightest your standard affectionate puss who was determined to shower you in hair and purrs, or a cat that didn’t get the memo that he wasn’t a tiger. His name was Xabi and although he loved a tickle under the chin, he didn’t attempt to crawl all over you. I thought he was a lovely cat, with a very placid nature. I sometimes went into his pen just to sit and chat to him for a bit, he seemed to appreciate the company even though he didn’t like too much fuss. I was sad to see him go, but glad that he’d got a nice quite home in which to live his retirement as he pleased. But that first pen was never quite the same without him hiding under the door.

My second favourite cat was a terror called Karl. I loved the bones off him, he was a tuxedo kitty, and hadn’t quite grown out of the naughty kitten stage despite being 18 months old. He would launch himself out of his pen when you opened the door, resulting in you running up and down the cattery after him for about 10 minutes trying to catch him. He never meant to cause harm, but he didn’t quite understand that his claws were very sharp, so would thrash about on a shelf clinging to your skin and playing very roughly. Eventually he started to calm down and be more approachable, rather enjoying a good fuss (though if you stroked him for too long he would resume his hyperactive self). He, too, scooped himself a home, leaving the other cats in his pen breathing a sigh of relief and the rescue staff shedding tears equal parts happiness and disappointment that their favourite clown was leaving them.

Afterwards came Marmalade, a big, soft ginger tom with a heart of pure gold. He was was FIV positive so had to be an indoor only cat in his new home, so it took a long time for him to find someone willing to take him on. He was such a placid and pleasant cat, with a huge appetite, both for food and cuddles. If you sat on a chair in his pen he would hop on to your knee and sit himself down, purring like a ferrari while you stroked him. For a long time, I tried to persuade my dad to let me have him, but my dad is very against cats and wouldn’t, sob. I now have my own place but annoyingly it’s a pet-free rent. So I’m still waiting for that puur-fect property.

Roxy was a tortured soul, an all-black cat with an attitude to match, but she sort of grew on me. She had been in the rescue for 6 years, due to her anti-social behaviour – every time a human entered her pen she would eye you up suspiciously, then should you bend down to pick up litter trays to empty them, she would swipe your butt, with not a moments warning. Despite this she seemed to be gentle, when offered a piece of chicken she took it carefully between her teeth so as not to rip your fingers off by mistake (I’m looking at you, Karl, Dutch and Dillon!). She lived in a pen with another cat called Poppy and the pair of them did not get on much at all. Eventually when there was shortage of cats Poppy was moved and Roxy had an entire pen to herself. Staff thought she might relax a bit more but she didn’t, still being an angry little panther. Some kind soul took pity on her though, and to everyone’s surprise, Roxy was adopted months before Poppy, who had seemed the friendlier and more approachable cat of the two.

At the moment, my favourite is another long-term resident called Saffy. During my first 6 months at the rescue I was a little afraid of her, because she had screeched at me and tried to rip my hands off after I tutted at her. But over time, she grew a soft spot for me and I her. She will hop off her seat whenever I enter her pen, and rub herself lovingly on my legs while I try to clean up, something that still takes me by surprise even today. I feel a connection with her in that I have built up trust with her, she knows I’m not out to annoy her and knows I’ll bring her food and she loves it. She is the most loving cat out of all the other cats she shares a pen with – Chloe the tortie who has a give or take attitude to life, Roohbarb the tabby tortie who tends to keep herself to herself, Mash the partially deaf white cat who attacks my feet every time I climb through the door because she hasn’t heard me coming (this I sympathise with, if it was socially acceptable for deaf humans to do that I would), and Bella the tortie who can be friendly but only on her terms. Saffy makes me feel as though she has accepted me into her clan and is the cat I’d most like to take home at present, just because she is so quiet and humble (unless you annoy her, of course).

I’m also fond of a black and white puss called Alana, who immediately charges over, annoying every other cat as she leaps on top of them in her excitement to hang out with a human. She’ll leap on to your knees, pad about for quite some time, and should you dare stop stroking her for a moment she will butt you in the face. She never fails to make me laugh but I worry one day she’ll get herself into trouble with other cats if she doesn’t stop using them as jumping platforms…

FInally, there was three cats called Smokie, Missy and Baby. Baby was the daughter of the other two, and they were looking for a home together as they were all so bonded. Smokie eventually went to a home on his own, as it was proving to be an impossible task to expect someone to take on all three, but Missy and Baby were some of the loveliest cats I’ve met. Missy would sit on your knee and lick your hands, face, any bit of skin you had exposed, just to nurse you and make sure you were okay. It was like having a cat version of my brother’s Labrador, Ishka, sitting on your lap. Baby was quiet, but sweet-ntatured, and loved a good tickle. I was sad to see them go.

I love talking about the cats at the rescue, so will write some more posts about them soon, perhaps even including some pictures when I find them!

Hello

Today is a big day for me. I’ve deleted my Medium account and begun this WordPress blog. Why? Because I felt like my Medium posts were very negative, and I felt the need to write something lighter, more genuine and much more positive.

I always wanted to be a writer as a little girl. I was determined to write stories about dogs, thanks to being a huge fan of Jenny Dale and Lucy Daniels, who wrote the lovely Animal Ark and Puppy Patrol books. I also had a big, beautiful Rough Collie dog as a best friend, and his actions were an enormous source of inspiration and entertainment to me. In fact, as I got older and blogs became a thing on the web, I started up one ‘written’ partially by Sandy. Unfortunately, he passed away about a year after the blog started, so I had to find something else to focus my writing on. And I really struggled.

Being Deaf (with speech) meant that I had stories of my own to tell. What it was like, to go through life, unable to hear what people were saying, to have confidence issues, being afraid to stand up for myself and get myself out there, into the big wide world. I started writing about that, and some posts proved to be hugely popular. It was great that people were getting an insight into how it felt to be me, but as time passed these posts seemed to become negative. In truth, I was probably a little depressed, having graduated from university and finding the world of work especially daunting. I needed to start being more positive, and finding my feet.

I’ve recently moved into a flat of my very own with my long-suffering boyfriend, Chris. It has been a truly wonderful experience, filling it with stuff to make it our place, knowing we have no rules to follow, not being worried about waking parents up by coming in late, not having to share rooms with siblings, and being able to relax and enjoy each other’s company, learning new things about each other (Chris is a pretty fine chef and certainly likes to cook… handy!) And the less fun parts – suddenly having a lot less money than we were used to, getting bills, buying food, cleaning the flat itself (especially the bathroom!). Sometimes all we want is to sit in the pub with a big fat steak and a pint, but we can’t afford that kind of luxury any more. All part and parcel of Adulting, I suppose. Bad things aside, it really has been a great experience.

The point of this blog, I suppose, is to share experiences, to be inspired, and to inspire, to make people laugh, and hopefully not cry. To grow more as a writer and to show everyone that being deaf is NOT an obstacle, but a platform from which to launch oneself and become the very best I possibly can.